Retinitis pigmentosa (RP) is a group of rare eye diseases that affect the retina (the light-sensitive layer of tissue in the back of the eye). RP makes cells in the retina break down slowly over time, causing vision loss. RP is a genetic disease that people are born with.
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April 16, 2024
An Eye-Opening Conversation with Disability Life Coach, Charlie Kramer
Join us for an inspiring chat with Charlie Kramer, a life coach who's truly mastered the art of living confidently with his disability. We'll dive into his journey with Retinitis Pigmentosa (RP), an inherited retinal condition that shapes his unique ...
Guest: Charlie Kramer
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June 13, 2023
Inner Peace in Outer Chaos with Morten Bonde
Morten Bonde returns to talk about life after publishing his book, Sentenced to Blindness, Now What, which chronicles his journey from hopelessness to possibility and liberation from sight loss due to Retinitis Pigmentosa. Since leaving his career at...
Guest: Morten Bonde
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May 9, 2023
Kitchen Confessions with Mary Mammoliti
Mary Mammoliti, host of the Kitchen Confession Podcast and the Dish with Mary TV Show, stops by to share her personal journey with Retinitis Pigmentosa (RP) and how she confronted her imposter syndrome, stopped saying sorry and started finding abilit...
Guest: Mary Mammoliti
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April 18, 2023
Elevating Today’s Stories with Lis Malone
“Marketing publicist”, podcaster and advocate, Lis Malone stops by to share her personal journey with Retinitis Pigmentosa (RP) and how she developed a #DontWait mindset to move forward through the uncertainty of her diagnosis and future. Lis and Joh...
Guest: Lis Malone
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Feb. 14, 2023
Mark Erelli and Lay Your Darkness Down
During a performance in summer 2020, Mark Erelli looked down at his guitar neck and couldn’t believe what he saw. Or rather, what he couldn’t see: his fingers on the frets. Soon after, a diagnosis of Retinitis Pigmentosa (RP) would bring some answers...
Guest: Mark Erelli
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Jan. 31, 2023
Neva Fairchild and the Motorola Q
The great Neva Fairchild stops by to share her unique sight loss story with Cone Rod Degeneration (a form of Retinitis Pigmentosa) and how she was set on a path to success by her parents. Neva recalls her time at Esther’s Place during her early days with the American Foundation for the Blind (AFB) and her inf...
Guest: Neva Fairchild
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Oct. 25, 2022
Robyn Rachel the Silver Lining Explorer
As a photographer well into her professional career, Robyn Rachel sensed something was changing in her body. After a routine eye exam, she was referred to a specialist and diagnosed with Retinitis Pigmentosa (RP) and Usher’s Syndrome (Usher’s 2A). Robyn ...
Guest: Robyn Rachel Lindemann
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Sept. 20, 2022
Bethany Cody: Don’t Dream It’s Over
As a teenager in South Australia, Bethany Cody, only experienced minor and somewhat random signs of a visual impairment. During her driver training she was concerned about driving at night. After consulting with an optometrist, she was referred to a spec...
Guest: Bethany Cody
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Sept. 6, 2022
Ren Leach and Audio Description
For more than 10 years Ren Leach has provided broadcast-quality Voice Over recordings for countless TV and radio commercials and video productions. In the last six months he has directed his voice efforts to Audio Description. Ren stops by to talk about ...
Guest: Ren Leach
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Aug. 30, 2022
Hindsight Is 20/200 with Chad Bouton
Host of the Hindsight Is 20/200 podcast, Chad Bouton, stops by to share about his journey growing up with Retinitis Pigmentosa (RP) . The ups and downs and advise he would give his younger self to take advantage of his disadvantages. Chad also discusses ...
Guest: Chad Bouton
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July 19, 2022
Chris Peltz and The Blind Grilling Experience
The most interesting griller in the world, Chris Peltz, stops by with an update on season two of his podcast, The Blind Grilling Experience. Chris and John discuss the numerous accessible tools available for outdoor grilling and John shares his experienc...
Guest: Chris Peltz
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March 1, 2022
Chad E Foster - Part Two
Chad E Foster is back to continue the conversation about how he was able to take advantage of disadvantages, embrace discomfort and change his mindset to experience tremendous growth and personal development. Chad also talks us through the experience of ...
Guest: Chad E Foster
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Feb. 15, 2022
Brittany Culp
Founder of Blind Fury Fitness, Brittany Culp, stops by to share why she believes that mental health and physical fitness go hand-in-hand, and contribute to the overall wellness of individuals. Brittany also talks about her journey with sight loss due to ...
Guest: Brittany Culp
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Feb. 1, 2022
Chad E Foster and Blind Ambition
Author of Blind Ambition, Chad E Foster, stops by to talk about his journey with retinitis pigmentosa and share some funny and painful trials and tribulations along the way. Chad also reflects on his transformation from victim to visionary, how his life ...
Guest: Chad E Foster
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Dec. 21, 2021
Steve Bate
Steve Bate, MBE stops by to share how the shock of his Retinitis Pigmentosa diagnosis may have been the best thing that ever happened to him. In just a few years Steve adapted his dreams of outdoor adventure into cycling and won Paralympic gold and world...
Guest: Steve Bate, MBE
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Dec. 14, 2021
Becky Andrews
Becky Andrews, CMHC stops by to share about her journey with Retinitis Pigmentosa, her business Resilient Solutions and some extraordinary athletic adventures. Becky also reflects on her memoir and gives John some much needed parenting advice....
Guest: Becky Andrews, CMHC
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Nov. 2, 2021
See-Through With Lance Johnson
Lance Johnson stops by to talk about his journey in the early stages of retinitis pigmentosa and how, as the host of The See-Through Podcast, he aims to create transparency on disabilities and the champions with them. Lance and John discuss several of th...
Guest: Lance Johnson
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Oct. 26, 2021
Morten Bonde
Have you ever thought to yourself; “What do I want out of life?” After receiving a diagnosis of Retinitis Pigmentosa at age 29, Morten Bonde did. Through subsequent struggles and increasing stress, he decided that he was going to change his mindset to ch...
Guest: Morten Bonde
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Aug. 25, 2020
The Most Interesting Griller in the World
Chris Peltz, from the Blind Grilling Experience, stops by to discuss retinitis pigmentosa, being technologically challenged and many things grilling...
Guest: Chris Peltz