Join us for an inspiring chat with Charlie Kramer, a life coach who's truly mastered the art of living confidently with his disability. We'll dive into his journey with Retinitis Pigmentosa (RP), an inherited retinal condition that shapes his unique ...
Join us for an inspiring chat with Charlie Kramer, a life coach who's truly mastered the art of living confidently with his disability. We'll dive into his journey with Retinitis Pigmentosa (RP), an inherited retinal condition that shapes his unique perspective on life and teaches us valuable lessons about resilience and acceptance.
Charlie shares his advocacy for mobility tools like the blind cane and opens up about the profound impact his disability has had on his identity. He sheds light on the importance of individuality, respect, and understanding when interacting with people with disabilities. Plus, he shares personal stories that help us understand the delicate balance between offering help and respecting independence.
We'll explore the hidden aspects of living with a disability and discuss societal norms and attitudes towards disabilities. Charlie likens his experience of sight loss to building a puzzle, emphasizing the importance of individual autonomy in navigating life's challenges. He shares his journey of self-discovery, acceptance, and how he's turned his blindness into opportunities for growth.
And let’s not forget that Charlie is also a musician. He discusses his immersive and transformative experience, "Singing in the Dark," a blindfolded singing and healing experience that's as unique as it is enlightening. We'll also get insights from his song, "Vision," which beautifully encapsulates his outlook on life.
Join us as we celebrate Charlie's roles in teaching, coaching, and singing, and discover his innovative approach to disability. Tune in and let's embrace and celebrate the diversity of life, both its opportunities and challenges.
🎙️ EPISODE LINKS ⬇
Charlie Kramer's Guest Profile (bio, social inks, etc.)
DID Episode: Tasting In The Dark with Hoby Wedler
DID Blog Post: 5 Things I Wish Were Understood About People With Physical Limitations
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
00:12 - Building Your Life Vision
01:33 - Meeting Disability Life Coach Charlie
03:06 - Coffee with Historical Figures
05:18 - Overcoming Fear and Self-Value
11:39 - Action-Based Coaching vs. Therapy
18:27 - Understanding Disabilities and Pity
23:03 - Embracing Privacy and Boundaries
26:06 - Advocating for Independence
31:38 - Singing in the Dark Experience
33:34 - Impact of Singing in the Dark
38:54 - Transformative Coaching with Charlie
40:32 - Connecting with Charlie Kramer
41:52 - Making Sight Loss Mysterious
43:06 - Creation of the Song ”Vision”
47:07 - Supporting Destiny is Debatable Podcast
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Music.
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Welcome to destiny is debatable a podcast and movement that will encourage you
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to build your life into the one you want.
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Here's your host a guy whose vision is like looking through binoculars backwards john grimes,
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hey hey howdy howdy thanks for tuning in subscribing and supporting the podcast
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experience The guest for this episode is Charlie Kramer.
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Charlie, among many things in life, is a disability life coach.
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And I don't know, he just has an incredible aura about himself and kind of how
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he teaches people through his social media posts and things that he says and talks that he's done.
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He's a pretty incredible guy and also a musician.
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So I was doubly interested in bringing Charlie on to find out some more.
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Hey, Charlie. Thanks for stopping by.
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Thanks so much for having me. It's nice to be here. It is. Nice to have you
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here, Charlie. It's been a long way getting this done.
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We've actually been talking about this. Well, not talking, but we originally
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had this scheduled for maybe a year or two ago. And just things happen.
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And the good news is that we're both still doing the same thing a couple years
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later. So yeah, agreed. I might be something about that.
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Maybe we're doing good stuff. I think we are.
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That must be it. Well, I hope that's the case. Yeah. Yeah.
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Okay. So disability life coach, the great Charlie Kramer's here with us.
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But before we get into that, Charlie, I have a few questions that I have to,
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I'm legally obligated by my listeners to ask you to get to know Charlie.
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So hang in there. Okay. Okay. I'm ready.
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You're a musician, Charlie. So this is an interesting question,
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I think. What is your favorite band or type of music?
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That's a big question for me. I would say if I have to choose one band,
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it's definitely The Who.
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I've seen them the most times in concert. Actually, I've seen them four times.
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I never saw them with Entwistle, unfortunately, but I've seen and with Roger
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Daltrey and Pete Townsend.
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And, you know, it's been amazing every single time. But I love a lot of type
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of music, you know, bluegrass.
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And, you know, I listen to a lot of like Irish and Scottish modern folk type stuff.
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And you name it, I listen to it, honestly.
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Okay, cool. Yeah. All right. What about reading?
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Do you have a favorite book or type of book or author? I don't do a lot of reading.
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It's never really been my thing.
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But I recently listened to the audio book of Matthew McConaughey called Greenlights.
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Yeah. Okay. So did you like that? It was great. It was great. I loved it. Yeah.
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And it's kind of sparked a drive in me to start listening to some more audio books as well.
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It's actually on my list of things to read.
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It's great. Yeah. I like Matthew. He's an interesting guy. I'd recommend it for sure.
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Okay, if you could have coffee with two other people in history,
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who would they be and what do you think you'd talk about?
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The first person would, you know, I, for the listeners, this might be more of
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a boring answer, but for me, this is the truth.
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I would bring my partner, Greta, without a doubt.
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Well, we're interested in the truth, so let's have it. Yeah.
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Yeah. I would definitely bring Greta with me.
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She's my life partner and someone that I always want to have around.
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And I also would bring my grandfather.
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We call him Papa Sean. He passed away when I was five years old and has this,
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I don't know, there's just some kind of connection there that's always guided me.
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And I've always felt super drawn to him, even though I didn't,
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you know, I was so young when he passed away.
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So I'd want to have the two of them there, have a cup of coffee,
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maybe even let it be a pint of Guinness, you know, and just relax and enjoy
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and connect with them and reflect.
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Who has been the best coach or guiding influence in your life?
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I think both of my parents in different ways.
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I've definitely had people outside of my parents who have been really helpful
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and I've hired coaches and I've worked with therapists and there's been so many people along the way.
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And I really think that a lot of what I've learned in life has come from my parents.
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And I will also give a special shout out to my mom too because she has retinitis pigmentosa like I do.
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So I've grown up with a role model of how to live life and a lot of what I teach
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and a lot of the way that I live and I learned it from her you know and I get
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to have that blessing so I would definitely say my parents for sure.
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If you could give your 19 year old self some advice what would it be and do
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you think you would listen?
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The second part of that question is fantastic. Do I think I would listen?
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Actually, I think I probably would.
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I've always been fascinated with being a person of value.
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I used to live by this quote, try not to be a man of success,
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but rather a man of value.
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And that was always what I lived my life by.
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And it was how in high school you have that little quote next to
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your picture on your senior year you know that was my quote okay so
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judging off of that i think i would have wanted to learn from
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myself i hope i the
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advice that i would give myself is just to be patient
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and to not not to mean be patient as don't try and let everything come to you
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but work really hard but try to expect less and be patient with the progress
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because i'm actually really proud to to be where I am today.
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And I'm proud of the person that I am.
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And I think sometimes throughout my younger years, I wanted to do too much too soon.
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And I think if I took more time to just go, it's all happening,
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look at it happening and take a step back, I might even be farther along,
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and potentially not farther along, but more grounded within who I am and what
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I do and feel feel even a deeper sense of self-worth,
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which I already have a very strong sense of worth, but it can only be improved,
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you know? So I think that would be it.
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Great. You've reached the end of the contractually obligated questions.
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Cool. Good job. Yeah. Signed, sealed, delivered.
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Okay, so disability life coach. I also want to throw in there a musician,
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which I think is super cool too.
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So how do those two, what is a disability life coach? What does that mean?
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Essentially, the work I do is I help people with disabilities to live a confident life,
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to learn how to integrate their disability into their lives,
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to accept it, to live based off of what they desire and what they know that
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they need rather than the lies of what people say we're capable of.
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And for some people, that means really big goals. But other times,
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it just means asking for the accommodations that we need in life,
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asking Asking for or gaining the confidence
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to start using a mobility tool or a cane or to work through the process of going
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to the doctor or how to disclose your disability in the workplace or even how
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to disclose your disability when you're dating someone. All those different things come into play.
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But really, it's building up the core of who you are and feeling confident and
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proud in who you are, not despite your disability, but with it.
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And I do that through one-on-one programs, through a group program called Confidently
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Disabled. And I have people that I work with continually, like in a continuation program.
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And yeah, that's, I'd say, a good summary of what my work includes and what
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it does. Yes. How much does fear play a role in that coaching?
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I mean, everybody has fear in life, but it's harnessing that and knowing where
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the boundaries are, particularly,
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I guess, with people with disabilities, the fear of being discovered or being
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not enough or you are less of a person, all those kinds of things.
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I mean, as a guy with a disability myself, which my My disabilities are mostly invisible to others.
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So there is the question about when do I disclose? How do I disclose?
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Is it, do I need to disclose ever in certain circumstances? Yeah.
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Are these types of things that come out in coaching sessions with you and the
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people that you work with? Yeah, definitely.
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I'd say a lot of this stuff is maybe halfway through a program or a little bit
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later on with how to disclose or what to say and what not to say.
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First thing that we need to do is we need
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to get really clear on what thoughts
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and belief systems are our own
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and what have been guided through societal norms
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through ableism and what of that have you internalized to believe about yourself
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that maybe you think i'm not good enough i'm not a partner that someone would
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want to be with because of my disability or no one wants to to hire me because
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of my disability or, you know.
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Maybe I shouldn't take a step out and really show my full authentic self because
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people will reject it and they won't accommodate for what I actually need.
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These are all belief systems, some of which are built upon experiences and traumas
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that have happened that are real.
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And it's about identifying and differentiating what those trauma-informed belief
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systems are and what the true belief systems of what you're capable are.
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And once you've separated those two things and you make it really clear,
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then it's easier to compartmentalize the fear and to look at it as,
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okay, I'm so glad that I know what I'm afraid of here.
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And how can I strategically take steps to work through it at a pace that is
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comfortable and doable for me? And that is something that I think a lot of people struggle with.
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They look at the goal and they look at where they are and they go, I can't do it.
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It looks too big. And my job is to help create steps that are small enough and
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actionable enough that they can take steps over time to get there.
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How does coaching compare to therapy?
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What's the difference? Yeah. So therapy is really built around talking and working
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through the trauma in our lives to get to a point where we may not repeat those actions over time.
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And a lot of times a therapist's job is to help us understand and help us learn
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on our own. What I mean by that is one of the biggest questions that a therapist
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will act is, and how does that make you feel?
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What do you think about that? Because
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they're guiding you to your own self-reflection and self-realization.
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And I actually am a big fan of this. And I'm in therapy myself.
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I have been for years. I deeply believe in it.
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And I also believe in people giving giving us direct advice and systems.
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I think the two of those things together are really important.
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That's what coaching is more of.
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Feedback. This is what's going on. Okay. Are you ready for some feedback and
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some next steps? If the answer is yes, great. Here's what we're going to do.
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I think we need to identify these things. I think we need to take actions here.
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We need to stop doing this, more of that, whatever it might be so that there's
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a clear path and a plan forward that you can start acting on.
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So coaching is more action-based and solution-driven.
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And therapy, even though it is solution-driven, is more of a a self-discovery
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experience that you're guided in a safe space where coaching can sometimes even
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feel more intense because I'm asking you to step out of your comfort zone,
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you know, and it's an agreement between each other to do that.
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Okay. And so you mentioned therapy that you've done over the years.
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Your disability, I suspect, has a lot to do with the need for that therapy.
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Kind of explain RP, retinitis pigmentosa, also called RP for short,
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to somebody that maybe doesn't understand what that means.
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Totally. And I actually want to take a step back and say that I've actually
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not spent a lot of time in therapy talking about my vision loss because by the
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time that I actually went into therapy,
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I had already accepted and built up self-worth around my blindness.
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I'd been using my cane for years.
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And I think a lot of that is to do with the fact that I have family members
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that have the same thing that I do.
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And that is retinitis pigmentosa, which is essentially a degenerative disease
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that runs in my family. It's a dominant gene.
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And it means that you got a 50-50 coin flip of whether or not you're going to
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have it. And you lose your peripheral vision over time.
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So I see like I'm looking through a straw at this point. I have 4% of my vision remaining.
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And I also have night blindness because of it. So I don't see anything in the dark.
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Obviously, if there's a light, I see the light. But if it's completely dark.
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Your eyes would adjust. Mine never do.
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And then I've got tons of other fun things that come along with it,
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like cataracts and sensitivity to the light and floaters and all,
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you know, you name it, right?
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I'm a little bit colorblind and things that I discover every single day that
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are new. And, you know, I go, wow, that's unique.
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And then I, you know, adapt to it and work through it.
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But that's a pretty general description of retinitis. One of those cool things
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that you got passed down through your family.
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Yeah, it's just for me, I look at it as something that's a part of my life and it makes me who I am.
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You know, I don't look at it as a burden. There's moments that it does challenge me greatly. And,
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I've gotten to a place in my life where I'm excited about those challenges.
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That's good. The podcast used to be called Ambiguously Blind.
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And some of the posts I've seen from you and some of the things I know about
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you, you can relate to being ambiguously blind or, you know,
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like this is an audio only podcast.
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Charlie and I are both wearing glasses. I mean, other than being devastatingly
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handsome, we're both wearing glasses, which I think would boggle the mind of
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some people that if you told them that you were blind, but but you're wearing corrective lenses.
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How do you explain that, Charlie? Well, it depends if I want to explain it or not.
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This is a scenario that I definitely will, but something I work on with my own
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life and also with other people is the freedom to be like, sometimes it's none
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of anyone's business and that's okay.
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If somebody comes up to me and says, wow, I see that you're using a cane and
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you're also wearing glasses.
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And I was just so curious if you could tell me about that.
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It depends on whether or not I'm going to answer that question.
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Sometimes I just want my coffee and I'm going to be like, hey,
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thanks so much for asking the question. I really appreciate your curiosity.
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I'm not open to talking about it right now, but follow me on Instagram if you
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want to learn more or maybe another time or thanks so much.
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And my name's Charlie, by the way, and talk to you. See you later.
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And end the conversation.
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So sometimes I'll do that that because I don't have to be a walking description
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and lesson point for people.
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And sometimes I'm open to it and I want to answer.
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And obviously this is one of those moments we're talking about it,
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but I just wanted to give that example and that freedom to people because I
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think it's really important.
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Yeah. And I think it's important that you also, you don't have to,
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you know, you may, we may be the only person that somebody meets that has RP
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or some sort a visual impairment.
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So there's also a little bit of a balance there where I don't.
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Necessarily want to give the wrong impression about a person that has a visual
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impairment or something.
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But at the same time, I don't, you know, like you just said,
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I'm just here to get my coffee.
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So I have to go and I don't, you know, this is probably a longer,
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this takes a lot longer to actually talk about probably than what I have time
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for right now. Like this is, I'm going, you're probably going.
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So let's, you know, here, here's how to connect with me. Let's,
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let's talk about it some other time. Sure. But that's if you're open to it.
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Sorry to interrupt. I would say that's if you want to take on that responsibility
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where I think sometimes people get confused where if you do have a disability,
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it doesn't mean that you have to be a spokesperson for your disability if you don't want to be.
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Now, I think you and I are people that enjoy that. And so oftentimes I will answer.
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And my answer, if they're asking about my glasses, I go, you know,
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I see like I'm looking through a straw.
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The glasses correct what's in the straw. It's helpful. They turn into sunglasses.
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Thanks for asking. Have a great day. And no matter what, however I respond,
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it's just with kindness and openness and, you know, gratitude for the good intentions.
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Yeah. It's like all the emails have been exchanging your signatures, sending love.
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So I definitely get that aura, that vibe from you. So I don't imagine you're
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going to, you know, irritate anybody.
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But at the same time, you're right. Just because it doesn't even have to be a disability.
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Somebody could ask anybody a question and you just aren't in the mood to answer
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or you just don't feel like you... We have privacy, right?
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We don't have to talk about everything. We're not on the couch all the time.
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And maybe we're not ready to get that deep or unveil that part of our life to just a random person.
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Definitely. And some things are private. But it's interesting, right?
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This is the invisible disability aspect. suspect because if you go up to someone
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and you say, hey, so I heard you went to the doctor recently.
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How was that doctor visit? What's your medical history like?
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That's not what you would ask somebody, right? That's very abnormal.
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But that's essentially what you're asking when you say, hey,
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I noticed you're blind. Tell me your life story.
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You're like, well, let me open
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up my medical file. So I think if you think about it that way, it's okay.
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So if you ask, no worries, is just be open to the fact that they might not want
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to answer and that's okay.
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And, you know, it's no big deal in either direction.
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Yeah, I think kind of on that same trajectory there, are there things in general
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working with people with disabilities or in particular sight loss,
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are there things that you wish people knew.
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About people with a disability or with sight loss?
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Yeah, I think a lot of people assume that sight loss is the same for everyone,
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that it looks the same or that the experiences are the same.
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And that's just not the case.
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I also want people to get really comfortable with the idea that.
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People are allowed to use canes or mobility tools, even if they can still see
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something. I think that's a really big one.
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The thought process of, well, you either have to have no sight or you can't
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use the cane is wild to me because it helps me so much.
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I want people to understand that's no big deal and to not think,
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oh, he's taking advantage or he's faking it.
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No, I'm using this so I don't run you over in the middle of the street. You should be grateful.
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And then the other thing too is that just because someone has a disability doesn't
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mean they automatically want pity or that you should feel sorry for them because
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a lot of us with disabilities are used to it.
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And again, it's an integrated part of our lives that sometimes can be challenging
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and can pose different problems, but it's not always a problem.
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It's not always a challenge, and it doesn't overwhelm our thoughts every day.
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Now, for some people in the beginning or different moments, it does.
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And that's when you would want that person to work with a professional, a coach or a therapist.
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But most of the time, we're just doing our thing. You know, we're living life
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and we're enjoying and we're doing things differently.
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But different is not always worse. And I think it doesn't also,
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at least for me, mean that we always need help or always want help anyway.
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You know, we do things differently and sometimes we're very comfortable with
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how we do things. just like people like the way they have routines and do things.
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And I feel like there's been times where somebody's offered help to me and I've
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refused it politely, of course.
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And I feel like they have a like, wow, guys, disingenuous or he doesn't appreciate
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anything I'm doing or I'm trying to help the guy and he doesn't want help.
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But I mean, independence is a big thing for anybody, but particularly people,
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and at least speaking for myself, that I value my independence.
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And there certainly are things I need help with and occasionally ask help for
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and all that kind of stuff.
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You know, that happens. happens, but I wish that people would respect a no and
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just kind of move on with it. I agree.
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That's a big one. I really am very glad that you said it. I'm curious how you
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feel when somebody says, are you sure?
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Are you sure? A bunch of times. Does that irk you as much as it irks me?
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So it's like, you know, I mean, again, this is where do we have,
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how much time do we have here?
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Right. With this person I'm standing next to, I don't, do you have the next
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25 minutes for me to give you my whole life story and tell you what I've been
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through and what I've been doing. So, yeah, I mean, and sometimes it's weird,
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too, because those things can come from people that, you know, really well.
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Right. Right. Could be a partner or a sister or a brother or a parent or somebody
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that really just just really wants to just help you.
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But at the same time, you know, I just got to do this my way.
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I want to do the way I want to do what I'm doing.
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And this is just how I do it. And I know there's probably an easier way to do it.
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But this is what I do and sometimes it's
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hard to maybe the closer the person is
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to you it's the harder it is to push them away or say no
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because just out of love they they want but help but there's there's a respect
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thing that you have to have and stand up for yourself and sometimes that's I
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found it difficult to I found the no answer to be difficult for them to receive
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that and And it's like, I don't understand this. What's going on here?
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I couldn't agree more. And the way that I like to explain it to people is building a puzzle.
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Sometimes you want help with the puzzle.
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But most of the time, you don't want to hand someone the puzzle that you just
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bought, have them go build it for you, frame it, and bring it back.
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That's not why you bought the puzzle. No, that is not why you bought the puzzle.
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That's not why they bought the puzzle.
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So I want people to get comfortable with allowing people to work through their own puzzles in life.
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I like that. That's good. And really be understanding of that.
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Because for me, when I'm walking around and banging my cane against things, like I'm having a blast.
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I'm figuring it out, you know? Don't turn the lights on. Like I am learning
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how to use my cane right now in a way that I never have before maybe. And I'm enjoying it.
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So if you say, let me turn the lights on. I say, no, I'm enjoying this.
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Like, no, really, it'll be easier. No, the answer is no.
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Because there could be a time where they're not there to turn the lights on.
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Exactly. And you need to know what to do in those situations,
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not to mention that you just want to be able to put the puzzle together yourself,
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which like you said, that's why I got the puzzle to begin with.
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That's why I got the puzzle, right?
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Yeah, 100%. And you're talking about the white cane. What is your relationship
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with the white cane been? Was it an immediate acceptance?
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Was there a journey for that? Or how did that work for you? Big journey. Big journey.
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My family, as I know I've given them a lot of praise in this podcast,
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I will also say that my family,
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built into societal norms and expectations and ableism,
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I would say have learned to assimilate and act like their disabilities are invisible
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more than stand out and be authentically what they are and who they need to
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be with their disabilities.
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So what that has meant is that instead of using a cane,
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they've hung onto the arm of their partner or walked around and acted like they
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could see things or aggressively look at the ground and try and scan and move
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really quickly or do more than they actually could to make it seem like they were okay.
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But everyone, you're like, we're not fooling anyone, right?
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So I have aunts and uncles and even times my mom at different moments had tried to do that.
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But I will say that she's gone on a journey of using her cane more often and
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has always used it a little bit more than others in the family.
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And I went through that same journey. I just wanted to be a normal teenager.
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I had my moments of wanting to be in my 20s and go out at night and not have to hang on to my friends.
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And eventually, I got to a place where I realized, what am I doing here?
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This is ridiculous. Just use the cane and enjoy it. And honestly,
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ever since I've made that shift, my life has infinitely improved on so many levels.
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And I think people would automatically think, wow, it must be so easy to navigate.
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That's the biggest difference. That's probably the smallest amount of impact.
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The biggest amount of impact has been my connection to my identity with my disability,
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my self-worth, my self-confidence, my knowingness in who I am.
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All those things have skyrocketed. And with that, opportunities in life have
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come too, because I'm putting out better energy into the world because I feel
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I have a better relationship to myself and my disability.
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And that's been my story and my journey with it. But for some people,
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the most authentic thing to do is to not use a cane or a mobility tool.
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And that's fine. It really depends.
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But I've loved it. And a lot of people call it a white cane.
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I have every color of the rainbow of a cane. So I tend to call it a blind cane
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or only a white cane when I'm using it because it can be confusing if I'm using
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a blue or a black or a green cane and I call it a white cane.
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They're like, what are you talking about? It's green.
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Or you could just say, well, I'm blind. So you tell me what color.
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It is that's right yeah what about you similar
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story so i don't really use one vision
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the whole spectrum thing is pretty for
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me it would be an identification so it would be so others know i can see just
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enough to be dangerous is what i like to say totally blind in my right eye and
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have about 2300 in my my left eye
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and i mean i ride a bike by myself which boggle you know it's It's like,
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he's wearing corrective lenses and he's riding a bike. The guy's not blind.
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So probably the biggest thing, like if I'm standing at Starbucks and I'm waiting
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for my drink and I have a cane in my hand, it's pretty easy for me to get assistance
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in finding the cup that has my name on it, right?
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If I'm crossing the street as a pedestrian, it's pretty easy for cars to understand
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that this guy doesn't see very well or not at all.
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Other than that there's not been a
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ton of benefits in my life to to use
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the cane so you know i think
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when i'm in public areas airports places where
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i've got to explain things that aren't obvious that's where it comes in handy
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for as an identification but for getting around most places you know i guess
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for the most part i'm okay but i do recognize that i think in kind of what you
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described or maybe another way to say it is we talked about independence earlier.
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I think the white cane can be a tremendous source of independence.
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It is, yeah. For somebody that uses it. Have you experienced that? Oh, yeah. Yeah.
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I'm a very independent person and all the work that I've done travel-wise throughout
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my life, I've pretty much done it by myself.
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I navigate through airports and through different cities, and I've even gone
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on a vacation to Ireland and England by myself, completely alone.
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I went for two weeks to Europe by myself two years ago when my vision was pretty
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similar to what it is now.
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And I don't think I could have done that without my cane.
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Now, there's still moments where people came up to me and grabbed me or tried
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to help me when I didn't need it. But for the most part, it helped me.
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It just gives me a sense of confidence and structure and foundation that I personally really like.
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But again, that's me. I've found that sometimes Sometimes independence can also
419
00:28:57,272 --> 00:29:00,452
come as like a fight to keep what you had.
420
00:29:00,612 --> 00:29:04,532
Like I want what I've always known and I don't want to let go,
421
00:29:04,732 --> 00:29:06,152
right? Like grasping on.
422
00:29:06,412 --> 00:29:10,172
Sure. Yeah. And you know, that can, that can happen in both directions.
423
00:29:10,192 --> 00:29:13,672
Like sometimes I need to let go of my cane and do something without it.
424
00:29:13,712 --> 00:29:15,252
And I feel like I don't want to let go. Right.
425
00:29:15,812 --> 00:29:19,852
Or the other way of like, I don't want to use my cane right now. Like I don't need it.
426
00:29:20,192 --> 00:29:24,652
I don't need it. And sometimes I struggle with that when I go to friends' houses
427
00:29:24,652 --> 00:29:29,312
or someone's house for dinner or something like that, because in my home,
428
00:29:29,332 --> 00:29:31,912
I don't use my cane. I know where everything is. I don't need it.
429
00:29:32,152 --> 00:29:35,512
But when I walk into someone else's home, the last thing I want to do is knock
430
00:29:35,512 --> 00:29:38,472
over their great aunt Sally. That would be bad.
431
00:29:39,332 --> 00:29:45,232
That would not be good. so I've learned even though it's really uncomfortable
432
00:29:45,232 --> 00:29:48,872
that's probably the point where I'm like I don't want to use my cane right now
433
00:29:48,872 --> 00:29:54,172
I use it in the beginning to at least map it and that was a big transition for
434
00:29:54,172 --> 00:29:57,512
me yeah I can relate to that particularly.
435
00:29:58,746 --> 00:30:03,046
Something else that you do, and I guess it's in the coaching or whatever realm
436
00:30:03,046 --> 00:30:06,826
you work in, is the singing in the dark as we transition to music.
437
00:30:06,966 --> 00:30:11,246
So I am enamored by your music. And we do have a song. You've given us a song to play.
438
00:30:11,306 --> 00:30:15,806
We'll play it at the end of the episode here, Vision, which is a super cool song.
439
00:30:15,886 --> 00:30:18,346
I've been jamming out to for the last couple of days now.
440
00:30:18,926 --> 00:30:24,606
No, thanks. Talk to me about singing in the dark and how you incorporate that
441
00:30:24,606 --> 00:30:27,566
into your approach to coaching and speaking. speaking.
442
00:30:28,246 --> 00:30:33,106
Definitely. Well, in a way, we almost have to reverse engineer because the music
443
00:30:33,106 --> 00:30:35,066
came before the coaching.
444
00:30:35,426 --> 00:30:40,366
So I grew up in the Jewish world and the reformed Jewish world.
445
00:30:40,466 --> 00:30:44,686
So I grew up going to summer camp and Jewish summer camp and my synagogue.
446
00:30:44,746 --> 00:30:47,426
And there was always someone playing the guitar. I learned how to play the guitar.
447
00:30:47,646 --> 00:30:51,766
And they said, hey, why don't you just play while we're doing this stuff?
448
00:30:52,066 --> 00:30:55,246
And I said, great, that's going to be way more fun than just just being here.
449
00:30:55,366 --> 00:31:01,586
And I eventually learned to love it and started to connect with my spirituality in a big way.
450
00:31:01,726 --> 00:31:07,386
And I began writing music and then I would travel around to different communities
451
00:31:07,386 --> 00:31:09,786
and organizations and share that music.
452
00:31:10,026 --> 00:31:16,406
And eventually, I learned and realized that I wasn't being my full authentic
453
00:31:16,406 --> 00:31:20,086
self as a musician or as a person because I wasn't integrating my blindness.
454
00:31:20,206 --> 00:31:21,906
So So everything was kind of connecting.
455
00:31:22,026 --> 00:31:26,426
I was traveling to different places, sharing my music with them and telling
456
00:31:26,426 --> 00:31:27,946
no one about my vision loss.
457
00:31:28,066 --> 00:31:31,346
They had no idea. I wasn't using a cane, nothing. No one had any idea.
458
00:31:31,726 --> 00:31:38,546
So eventually, I gained the confidence in myself to stand out there.
459
00:31:38,606 --> 00:31:44,366
And then I started integrating my blindness and my vision loss into my music and started,
460
00:31:44,954 --> 00:31:50,234
The first way that I did that was by creating a blindfolded singing and healing
461
00:31:50,234 --> 00:31:52,154
experience called Singing in the Dark.
462
00:31:52,874 --> 00:31:58,334
Essentially what it is, it's 45 minutes to an hour of people with blindfolds on.
463
00:31:58,574 --> 00:32:02,214
They are guided into the space, so they don't know what the room looks like.
464
00:32:02,274 --> 00:32:05,874
I'm already in there with other musicians potentially or just myself,
465
00:32:06,054 --> 00:32:09,314
and I'm playing music and guiding them in.
466
00:32:09,554 --> 00:32:12,554
And there's people actually guiding them in the way that you're supposed to
467
00:32:12,554 --> 00:32:15,614
guide people who are blind or visually impaired. They get sat down.
468
00:32:15,754 --> 00:32:20,054
They have no idea where they are. And then for the next hour to 45 minutes to
469
00:32:20,054 --> 00:32:24,734
an hour, I basically take them through a musical experience where the music
470
00:32:24,734 --> 00:32:28,314
is almost there to bring them into the room because they think it's going to be about the music.
471
00:32:28,494 --> 00:32:34,434
But really, it's about learning how to sing in the dark. How do we learn to
472
00:32:34,434 --> 00:32:40,594
use our negative experiences and our challenges in our lives to bring lessons
473
00:32:40,594 --> 00:32:43,154
and opportunities for growth?
474
00:32:43,454 --> 00:32:48,494
And that's what I've done to guide people through that. So at this point,
475
00:32:48,514 --> 00:32:51,854
with that teaching, I was already a certified mindfulness instructor.
476
00:32:52,214 --> 00:32:56,614
I'd been leading spiritual communities for a long time. And through that experience
477
00:32:56,614 --> 00:33:00,534
of singing in the dark, I really learned that my biggest passion in life was
478
00:33:00,534 --> 00:33:03,994
helping people to unlock their greatness.
479
00:33:04,514 --> 00:33:08,874
And then I realized, I've been in this Jewish space for so long.
480
00:33:09,234 --> 00:33:15,134
It's been so beautiful for me, but I want to help other people with disabilities
481
00:33:15,134 --> 00:33:20,614
that I saw all around me, even my family, that are struggling to just say,
482
00:33:20,774 --> 00:33:23,034
hey, this is me, and I'm cool with that.
483
00:33:23,034 --> 00:33:25,714
And that's where the coaching journey began.
484
00:33:25,854 --> 00:33:30,714
And I got certified and trained in coaching and improved skill sets.
485
00:33:30,834 --> 00:33:34,034
And then it's really taken off from there. And now it's my full-time work.
486
00:33:34,154 --> 00:33:38,634
So I still travel and go to different communities and I'll do Singing in the Dark.
487
00:33:38,754 --> 00:33:42,254
And I've done Singing in the Dark for a thousand people in 25.
488
00:33:42,654 --> 00:33:47,274
The spectrum is super wide. And I'd say each time is powerful and amazing because
489
00:33:47,274 --> 00:33:51,834
you get to feel in the room without seeing it what people are going through.
490
00:33:52,034 --> 00:33:56,874
And they get to make space for the growth that they want to achieve in their
491
00:33:56,874 --> 00:34:01,034
life without having to have people watch them go through that experience.
492
00:34:01,334 --> 00:34:04,474
But then they're also surrounded by everyone doing that at the same time.
493
00:34:04,594 --> 00:34:07,154
So it's very communal. And it's also very personal.
494
00:34:07,714 --> 00:34:10,574
And I love it. I love doing Singing in the Dark to this day.
495
00:34:10,574 --> 00:34:12,814
So do you think music is the key there?
496
00:34:12,934 --> 00:34:17,594
I mean, I just I'm a music dork. I love music. And it is music.
497
00:34:17,754 --> 00:34:20,454
What opens the door for that? You think?
498
00:34:20,714 --> 00:34:22,754
I think that's what people believe.
499
00:34:23,294 --> 00:34:28,854
But to me, what really opens the door is the silence after the music.
500
00:34:29,912 --> 00:34:34,332
So once the door is opened and they walk in the room and the door is shut,
501
00:34:34,472 --> 00:34:39,512
speaking metaphorically right now, not necessarily exactly how the program goes,
502
00:34:39,632 --> 00:34:43,872
but once you open the door, which is the music, and you go inside and you shut
503
00:34:43,872 --> 00:34:45,332
the door, and then you're there with yourself,
504
00:34:45,572 --> 00:34:50,032
you can't look around, and you're in that moment, and you're present,
505
00:34:50,112 --> 00:34:51,572
and everyone else is there.
506
00:34:51,632 --> 00:34:54,572
There's this silence and connection within the room.
507
00:34:54,832 --> 00:34:59,472
Once that first moment hits, probably about three to five minutes into the experience.
508
00:35:00,412 --> 00:35:02,572
Something flips for everyone.
509
00:35:02,992 --> 00:35:07,072
And there's an energy that's created where we're safe now.
510
00:35:07,232 --> 00:35:12,092
We can go in and we can go deep. And really, it's those moments where I talk
511
00:35:12,092 --> 00:35:17,792
through things and I share my darkest moments and teach people how to overcome
512
00:35:17,792 --> 00:35:19,352
the different challenges in their lives.
513
00:35:19,472 --> 00:35:24,632
And they're not watching themselves or worrying about other people watching them.
514
00:35:24,812 --> 00:35:29,512
There's this It's this freedom that cracks them open and the music in a way
515
00:35:29,512 --> 00:35:31,392
gives space in between those moments.
516
00:35:31,452 --> 00:35:35,752
It's like the break, you know, it gives them the freedom to take a deep breath.
517
00:35:36,052 --> 00:35:40,572
But I wouldn't say that the music itself itself is the thing that cracks them
518
00:35:40,572 --> 00:35:42,552
open. I think it's the doorway.
519
00:35:43,292 --> 00:35:47,552
Yeah. Coupled with coupled with the blindfold. I think you said it a couple
520
00:35:47,552 --> 00:35:51,072
of times, like they're not worried about what people are thinking of them because
521
00:35:51,072 --> 00:35:55,212
they're not looking at them or how they're acting or what their expression may be.
522
00:35:55,512 --> 00:35:59,252
It's everybody's on an equal playing field. I mean, everybody was on an equal
523
00:35:59,252 --> 00:36:01,252
playing field when they walked in for the most part, I guess.
524
00:36:01,252 --> 00:36:06,832
But like, yeah, one of these major senses has been removed and that allows someone to.
525
00:36:07,820 --> 00:36:10,880
I guess, dance like no one's looking kind of sense, right? Exactly.
526
00:36:10,960 --> 00:36:17,760
Yeah. And to see themselves and look at inside themselves in ways that they may not do.
527
00:36:18,040 --> 00:36:22,520
Because even if you try and think about yourself and focus for a little bit,
528
00:36:22,680 --> 00:36:26,700
there's so many distractions in life, even for people who are blind, right?
529
00:36:26,920 --> 00:36:31,620
Forget about what you see, but, oh, I hear a dog barking outside or,
530
00:36:31,640 --> 00:36:34,380
oh my God, what's that siren? It's so easy to get distracted.
531
00:36:34,620 --> 00:36:38,440
But when you're in a safe place like that, where your sight is gone and everyone's
532
00:36:38,440 --> 00:36:41,480
focused, you actually have an opportunity to go within.
533
00:36:41,800 --> 00:36:45,080
Yeah, that's great. I love it. Yeah, I need to be at one of those experiences,
534
00:36:45,380 --> 00:36:47,720
Charlie. Let's do it. You're invited.
535
00:36:48,180 --> 00:36:51,580
Let's match up our schedules here, right? Okay, great.
536
00:36:51,740 --> 00:36:56,800
So I've had Hobie Wedler on the podcast before, and he does a similar thing.
537
00:36:56,800 --> 00:36:57,700
It's Tasting in the Dark.
538
00:36:57,780 --> 00:37:00,760
And Hobie is a scientist. He's totally blind.
539
00:37:00,940 --> 00:37:03,960
He's a master master scientist i mean he's got taste down
540
00:37:03,960 --> 00:37:06,520
like you can't believe and he was telling me a
541
00:37:06,520 --> 00:37:09,540
story about how he had a group of like i'll just
542
00:37:09,540 --> 00:37:15,720
say maybe around a hundred or so sommeliers the wine experts like this group
543
00:37:15,720 --> 00:37:21,680
of wine experts and they were pairing music so he had everybody blindfolded
544
00:37:21,680 --> 00:37:28,720
and these are wine experts and they gave them songs to they had like four wines,
545
00:37:29,340 --> 00:37:31,020
or four glasses of wine.
546
00:37:31,460 --> 00:37:33,640
And the first three were different.
547
00:37:34,340 --> 00:37:37,680
But the fourth one was the same as one of the others.
548
00:37:38,500 --> 00:37:40,920
And I think actually, I think it was the same as the third one,
549
00:37:40,980 --> 00:37:43,600
like the one right before it. But they changed the song.
550
00:37:44,811 --> 00:37:50,671
Between those two and the descriptions that they gave of what the wine was totally
551
00:37:50,671 --> 00:37:52,531
different, like couldn't have been more different.
552
00:37:52,691 --> 00:37:56,051
And then once it's revealed that you just had the same wine two times in a row,
553
00:37:56,211 --> 00:37:57,671
like their minds were blown.
554
00:37:58,091 --> 00:38:00,971
So I think that the concept of,
555
00:38:00,991 --> 00:38:07,311
of the blindfold paired with the music and just the experience of that can just
556
00:38:07,311 --> 00:38:13,571
totally shift your thoughts or make you think of things just completely different.
557
00:38:13,671 --> 00:38:15,931
And I think that's, unbelievably powerful.
558
00:38:16,431 --> 00:38:21,111
Yeah. I like to even think of it too, is just when you zoom out of the experience
559
00:38:21,111 --> 00:38:23,751
and just think of, I'll just go my life.
560
00:38:24,071 --> 00:38:28,091
I get to do that all the time because there's so many moments that I can't see.
561
00:38:28,491 --> 00:38:33,011
And I have had to go inward and really ask myself those big questions because
562
00:38:33,011 --> 00:38:34,191
there's nothing else going on.
563
00:38:34,691 --> 00:38:39,971
And to me, that has been a tremendous opportunity that It has helped me grow
564
00:38:39,971 --> 00:38:44,691
and really gain clarity on what I want to do in my life and what I'm passionate about.
565
00:38:45,151 --> 00:38:51,531
And to me, it's been a huge gift. So that's why I say there's challenges that
566
00:38:51,531 --> 00:38:54,011
come with being blind, but there's also opportunities too.
567
00:38:54,171 --> 00:38:57,671
And it's really about getting comfortable enough with it so that you can be
568
00:38:57,671 --> 00:38:59,251
open to those different opportunities.
569
00:39:00,011 --> 00:39:06,071
Okay. So let's talk a little bit about the coaching thing. Who needs Charlie in their life?
570
00:39:06,271 --> 00:39:08,891
What's the person look like? What are they going through? Drew?
571
00:39:08,911 --> 00:39:15,571
Where are they in life that Charlie swoops in and takes care of and turns things around for us?
572
00:39:16,071 --> 00:39:22,211
Well, that's sweet. One thing I would say is that I always tell my clients whenever
573
00:39:22,211 --> 00:39:28,091
they're graduating from a program that it's not me that actually got them into
574
00:39:28,091 --> 00:39:29,071
the place that they are now.
575
00:39:29,251 --> 00:39:32,271
It's all the work and dedication that they put in. So the first thing I would
576
00:39:32,271 --> 00:39:36,691
say is someone Someone who really wants to make a change in their life and is
577
00:39:36,691 --> 00:39:42,611
committed to making a change is someone that I think is ready for working with a coach.
578
00:39:42,891 --> 00:39:45,271
Now, what kind of change?
579
00:39:45,671 --> 00:39:50,391
If they're ready to start authentically showing up as themselves with their disability,
580
00:39:50,711 --> 00:39:54,111
if they're ready to shed negative belief systems that have been holding them
581
00:39:54,111 --> 00:39:59,531
back, if they have really been struggling with heavy emotions around their disability
582
00:39:59,531 --> 00:40:02,831
and they don't know what to do with it or don't know know how to compartmentalize it.
583
00:40:02,911 --> 00:40:07,271
And it's making them show up in ways that are not as aligned with their desires,
584
00:40:07,511 --> 00:40:12,551
all those different types of things, or even more, I don't know how to say it,
585
00:40:12,571 --> 00:40:17,451
more like concrete things and less emotionally driven pieces where they want
586
00:40:17,451 --> 00:40:20,091
to integrate their disability into their line of work,
587
00:40:20,171 --> 00:40:22,951
but they don't know how, or they want to disclose their disability at work,
588
00:40:22,971 --> 00:40:26,671
or maybe they're going through a challenging situation in their work environment
589
00:40:26,671 --> 00:40:29,091
around their disability and they don't know how to navigate it.
590
00:40:29,131 --> 00:40:31,251
Those are all different pieces as as well.
591
00:40:32,361 --> 00:40:36,961
Could be a great fit for working with me. So where's the best place for people to find Charlie?
592
00:40:37,761 --> 00:40:43,001
Charliekramervision.com, I suspect? That is the website. You can also follow
593
00:40:43,001 --> 00:40:45,261
me on social media and come along for the ride there.
594
00:40:45,481 --> 00:40:49,761
And I always encourage people to send me a message on Instagram and just say,
595
00:40:49,841 --> 00:40:51,621
hey, and I respond to every message I get.
596
00:40:51,801 --> 00:40:54,821
And you got a great following on Instagram and got some great videos,
597
00:40:54,941 --> 00:40:57,221
man. You've gone viral. It's pretty awesome.
598
00:40:57,681 --> 00:41:01,141
Thank you. What's the coolest video you've done? done?
599
00:41:02,081 --> 00:41:07,981
Coolest one? I don't know. Coolest or one you got the most fun with, I guess, maybe.
600
00:41:08,441 --> 00:41:10,441
Yeah, yeah. I would say if you were going to say the most views,
601
00:41:10,561 --> 00:41:12,501
I would say that's not the coolest video I've done.
602
00:41:13,421 --> 00:41:17,061
The video with the most views is just me walking at Disneyland with my cane
603
00:41:17,061 --> 00:41:21,081
and everyone's getting out of the way. I don't think that's that cool. It's just my life.
604
00:41:21,541 --> 00:41:26,701
The one I've had the most fun with was showing people how I shop at a grocery store.
605
00:41:27,441 --> 00:41:31,441
It's just just really cool because I do it in such a different way, but I still do it.
606
00:41:31,941 --> 00:41:37,581
And it shows the balance between how I use my senses other than my eyesight,
607
00:41:37,761 --> 00:41:40,021
but also at different times, just use my eyesight.
608
00:41:40,341 --> 00:41:43,881
And I like how it confused people. They're like, how did he know the name of that cheese?
609
00:41:44,201 --> 00:41:47,701
And then I'm smelling the apples or touching the avocados to see if they're right.
610
00:41:47,901 --> 00:41:52,481
So it's a cool balance there. And I really, really had fun making that video. you.
611
00:41:52,861 --> 00:41:57,781
Making sight loss even more mysterious than it already is, I guess,
612
00:41:57,881 --> 00:41:59,861
in their mind or trying to explain it, I guess, rather.
613
00:42:00,321 --> 00:42:05,001
Yeah. Well, I actually like to say, let them be confused. You're allowed to be confused.
614
00:42:05,441 --> 00:42:08,441
Your confusion is none of my business. I'm just going to keep doing me.
615
00:42:08,681 --> 00:42:12,021
Yeah, that's right. That's right. Love it.
616
00:42:12,481 --> 00:42:16,981
All right. Well, Charlie, it's been a lot of fun and I'm glad we were able to do this.
617
00:42:17,001 --> 00:42:19,921
As I mentioned earlier, I think we're going to go out with Vision,
618
00:42:20,101 --> 00:42:21,461
which is just an awesome song.
619
00:42:21,601 --> 00:42:25,941
Tell me a little bit about the album and how the song came together.
620
00:42:26,621 --> 00:42:29,561
Yes. Well, thanks for playing it and thanks for having me.
621
00:42:29,661 --> 00:42:33,741
And the song is, it was actually done in a really cool way.
622
00:42:33,801 --> 00:42:37,821
I got in the studio and I only had the title of the song.
623
00:42:37,921 --> 00:42:42,001
It was the last song on the album. I just knew I wanted to create a song called Vision.
624
00:42:42,681 --> 00:42:47,301
And then three of us, my producer, Jeremy, my cousin, Zach, and I,
625
00:42:47,341 --> 00:42:52,781
we got in the studio, we had our guitars and we just blindfolded ourselves for three hours.
626
00:42:52,881 --> 00:42:55,961
Like we were in the singing in the dark and we wrote the song like that.
627
00:42:56,141 --> 00:42:59,841
And then we started recording it and we finished the recording the next day.
628
00:42:59,921 --> 00:43:01,961
So it was kind of unknown.
629
00:43:02,141 --> 00:43:03,601
It just, it was one of those moments
630
00:43:03,601 --> 00:43:06,241
where we just trusted years of musicianship and pulled it together.
631
00:43:06,441 --> 00:43:09,061
And it's one of my favorite songs that I've ever written too.
632
00:43:09,161 --> 00:43:12,141
So it was a really cool experience and just talks about how,
633
00:43:12,261 --> 00:43:16,421
you know, my journey with my, my blindness is something that has been both beautiful
634
00:43:16,421 --> 00:43:20,641
and challenging and that I don't let it define me, but at the same time, it also defines me.
635
00:43:20,880 --> 00:47:02,320
Music.
636
00:47:03,247 --> 00:47:06,487
Thanks so much for spending your time with the destiny is debatable podcast.
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Please rate and write a review wherever you subscribe. It really does help us
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grow and reach new people.
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For more information, visit john B. Grimes.com.
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Destiny is debatable is a symbol of production.
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Music.
Disability Life Coach, DEI Speaker & Consultant
Legally blind from Retinitis Pigmentosa, Charlie Kramer unites, magnetizes and elevates those around him. Recently featured in USA Today, Charlie is a life coach for the Disabled, helping his clients gain vital self advocacy skills, independence, acceptance, and guides them in effectively accomplishing their relationship and career goals.
An international touring speaker, performer and musical artist, Charlie has traveled across North America, Israel and Australia sharing his talent and powerful message. He utilizes his blindness as a tool to educate people on the importance of inclusion, equality and radical self-acceptance.
To learn more about Charlie, his offerings and to work with him, visit www.charliekramervision.com.