Interview
April 18, 2023

Elevating Today’s Stories with Lis Malone

“Marketing publicist”, podcaster and advocate, Lis Malone stops by to share her personal journey with Retinitis Pigmentosa (RP) and how she developed a #DontWait mindset to move forward through the uncertainty of her diagnosis and future. Lis and Joh...

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April 4, 2023

Ryan Fleury and AT Banter

Co-host of the AT Banter Podcast, Ryan Fleury, stops to share the story of how his sight was abruptly lost in an accident and the new found direction his life took thereafter. Ryan and John discuss assistive technology and how AI and Chat GPT,  will ...

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March 28, 2023

Meningitis Stories and Advocacy with Patti and Alicia

Patti Wukovits and Alicia Stillman, two mothers who each lost their young, healthy daughters too soon to a now vaccine-preventable disease, Meningitis B (known as MenB). High school senior Kimberly (Patti’s daughter), 17, died one week before her gra...

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March 21, 2023

Together Achieving Dreams with Kathryn Webster

Founder and President of the Together Achieving Dreams (TAD) Foundation, Kathryn Webster, stops by to share her unbelievably unique sight loss journey and the humbling moment she became comfortable with herself. Kathryn explains TAD Foundation’s thre...

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March 7, 2023

NSITE: A Vision For Talent

Director of Strategic Partnerships, Billy Parker, stops by to explain how NSITE is a one-stop-shop for blindness employment. A spinoff of the National Industries for the Blind (NIB), NSITE works with employers to identify potential candidates who are...

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Feb. 21, 2023

James Warnken and Online Accessibility

James Warnken stops by to share about his journey with progressive vision loss due to the rare eye disease, Genetic Retinal Dystrophy, which typically leads to blindness. He discusses some of the challenges he faced during his unconventional path thr...

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Feb. 14, 2023

Mark Erelli and Lay Your Darkness Down

During a performance in summer 2020, Mark Erelli looked down at his guitar neck and couldn’t believe what he saw. Or rather, what he couldn’t see: his fingers on the frets. Soon after, a diagnosis of Retinitis Pigmentosa (RP) would bring some answers...

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Feb. 7, 2023

Meningitis Stories with Painter Sam

Fellow survivor, Samantha Bennett, stops by to share her meningitis experience that begins as a 10-month-old baby and how the fast action of her family and an ER doctor helped her beat the odds. She recalls the countless months spent in the hospital ...

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Jan. 31, 2023

Neva Fairchild and the Motorola Q

The great Neva Fairchild stops by to share her unique sight loss story with Cone Rod Degeneration (a form of Retinitis Pigmentosa) and how she was set on a path to success by her parents. Neva recalls her time at Esther’s Place during her early days with the American Foundation for the Blind (AFB) …

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Jan. 24, 2023

Lukas Simianer and Clusiv

Founder and CEO, Lukas Simianer, stops by to illuminate some staggering employment statistics of the blind and visually impaired community. He shares the origin story of Clusiv, the world’s first e-learning platform built for and by the blind and the...

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Dec. 20, 2022

Kirk Adams and Innovative Impact

Kirk Adams stops by to share his sight loss story and journey learning to advocate for himself and how his work with the Seattle Lighthouse for the Blind lead him to the CEO position at The American Foundation for the Blind (AFB). Kirk talks about th...

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Dec. 13, 2022

Build Your Own Table with Jackie Summers

Entrepreneur and founder of Jack From Brooklyn, Jackie Summers shares how a health scare caused him to reevaluate his priorities, create a liqueur company, and build his own table. While creating Sorel, a modern twist on a 500-year-old Caribbean clas...

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Nov. 15, 2022

Chef Regina, Your Friend In The Kitchen

While on a family road trip, Regina Mitchell noticed a pain in her eye that changed from slight to excruciating within a few days. After a long medical journey she was diagnosed with Bilateral Panuveitis and began losing her sight rapidly. Regina sto...

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Nov. 8, 2022

Live Life Rich with Marissa Nehlsen

Professionally Marissa Nehlsen is a coach, speaker, and CEO of a 7-figure financial firm. Personally, she is a sister, mother, and grandmother with an extraordinary journey from a trailer court to financial freedom with plenty of challenges along the way...

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Nov. 1, 2022

Tasting in the Dark with Hoby Wedler

Born with the rare condition, Microphthalmia, Dr. Hoby Wedler has been totally blind since birth and is remarkably tuned into his surroundings and has frequently chosen to walk the unbeaten paths in life. Among many things Hoby is a chemist, food scienti...

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Oct. 25, 2022

Robyn Rachel the Silver Lining Explorer

As a photographer well into her professional career, Robyn Rachel sensed something was changing in her body. After a routine eye exam, she was referred to a specialist and diagnosed with Retinitis Pigmentosa (RP) and Usher’s Syndrome (Usher’s 2A). Robyn ...

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Oct. 18, 2022

Assistive Technology with Matt Philipenko

Matt Philipenko returns to expand on the assistive devices and software that makes his world go ‘round. As a Microsoft Office Ranger, Matt is passionate about Windows and Office accessibility. Matt takes John for a tour of new and improved Magnifier and ...

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Oct. 5, 2022

Meningitis Stories with Andy Marso

As a senior at the University of Kansas, Andy Marso was not aware of the signs and symptoms of meningitis. Because of the fast action of his friend and local doctors Andy miraculously survived to tell the tale in his book, Worth the Pain: How Meningitis ...

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Sept. 27, 2022

Thomas and Reid My Mind Radio

Producer and host of Reid My Mind Radio, Thomas Reid, stops by to share his journey that started as an infant with a rare form of cancer, retinoblastoma, that eventually took both of his eyes and how life began anew in 2004. Thomas explains what he does ...

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Sept. 20, 2022

Bethany Cody: Don’t Dream It’s Over

As a teenager in South Australia, Bethany Cody, only experienced minor and somewhat random signs of a visual impairment. During her driver training she was concerned about driving at night. After consulting with an optometrist, she was referred to a spec...

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Sept. 6, 2022

Ren Leach and Audio Description

For more than 10 years Ren Leach has provided broadcast-quality Voice Over recordings for countless TV and radio commercials and video productions. In the last six months he has directed his voice efforts to Audio Description. Ren stops by to talk about ...

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Aug. 30, 2022

Hindsight Is 20/200 with Chad Bouton

Host of the Hindsight Is 20/200 podcast, Chad Bouton, stops by to share about his journey growing up with Retinitis Pigmentosa (RP) . The ups and downs and advise he would give his younger self to take advantage of his disadvantages. Chad also discusses ...

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Aug. 23, 2022

Rise Up with Matt Philipenko

Matt Philipenko stops by to share his journey with the rare retinal disease Stargardts, how it affected him and his family and why he developed the mindset to Rise Up rather than roll over. Matt also discusses the extraordinary nomadic adventure that ult...

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Aug. 9, 2022

Stephanae McCoy and Bold Blind Beauty

Stephanae McCoy stops by to share her unique sight loss story and talk about the advocacy platform she created called Bold Blind Beauty. which celebrates a diverse and inclusive community through empowerment, connection, and barrier breaking. Stephanae a...

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